[WestMALocals] (no subject)
Martina Robinson
martina_robinson at hotmail.com
Tue Aug 21 19:57:55 EDT 2007
Dear Fellow Greens,
Below is my floor proposal for the convention. I need (I believe) 14
co-sponsors. I already have two, thanks Maureen and Mike. If you are
interested in co-sponsoring this proposal, please email me. Also if you
have suggestions, include them.
Sincerely,
Martina
**************************************************************************
Floor Proposal
In support of the Community Choice Act (hereafter referred to as CCA)
Green-Rainbow Party Convention
August 25th, 2007
Submitted by Martina Robinson
Co-sponsors: Mike Heichman and Maureen Doyle
As many of you know, I have been working to pass a National homecare
legislation formerly called MICASSA the Medicaid Community Attendant
Services and Supports Act, along with many of my colleagues both disabled
and not disabled in the disability rights movement around the country.
This year, the bill has been renamed the Community Choice Act in effort to
illustrate that if you wish to stay in a nursing home and this bill passes,
you still have the option to do so. What the bill would eliminate, however,
is the need for people to move and leave friends, family and support
structures that are already in place in order to receive independent living
services such as personal care assistants. Right now, you have to live in a
state or area that provides these services in order to get them.
Take me for example: In 2000, I had to move from Pennsylvania to
Massachusetts in order to receive an adequate number of personal assistance
hours and housing subsidy. If I would have remained in Pennsylvania (which
I badly wanted to do) with my family, friends and job that I liked very
much, I would have received no housing assistance and only three hours of
PCA care a day. In Massachusetts I receive 16 hours of PCA care per 24
hours, and have a rental assistance voucher. Granted my life is not
perfect, but at least it is survivable. I dont feel that it is very
American (at least in terms of the America I want) to tell someone they have
to move in order to survive. But it happens every day to disabled people
all over our nation with various kinds of disabilities, not just physical,
but mental, psychological and emotional as well. People who are perfectly
capable of having jobs and living independently with supports cannot do this
merely because of where they are currently located.
According to the Ten Key Values of the Green Party, which we have all agreed
to, the Green-Rainbow Party of Massachusetts can and should take a stand in
support of the CCA. The evolution of the CCA from the original bill that
only specified support for people with physical impairments was brought
about by advocates with other disabilities clearly asking the crafters,
What about us? Of course, in the minds of the people who wrote the bill,
these people would be served as well. After it was called to their
attention that the wording was less than specific, it was altered because
the writers did not want to give Washington an out. I think this is a fine
example of Grassroots Democracy, the first key value.
The second key value of Social Justice and Equal Opportunity is also served
by the bill. It is not socially just to have to move away from people you
care about in order to avoid going into an institution. You cannot say that
disabled people have equal opportunity when they are forced into nursing
homes because they and their families dont have the resources to privately
pay for homecare.
This bill also supports the fifth key value of Decentralization because it
allows disabled people with help from friends and family if necessary to
decide what services are appropriate for them, and individually design their
own support structure as they see fit.
We very rarely think of supporting something like the CCA as a means of
supporting key value number six, Community-based Economics and Economic
Justice, but it is. Again, using myself as an example, I receive 111.75
state paid for hours of support per week, and my PCAs get $10.84 per hour,
more than most PCAs throughout the nation by a dollar or two. Therefore,
the total state expenditure for my care is $62,991.24 per year. Yet if I
were in an institution, my bill would be $87,500 per year according to
Kiplingers personal finance report of March 2004, and Im sure the price of
institution care has gone up since then, though I have no later data.
According to the Center for Medicare and Medicaid services, over 8,200 of
our fellow Massachusetts citizens who live in institutions wish to rejoin
their communities and live independently. If every one of these 8,200
people needed the same level of services that I do, (bearing in mind that
most people need less services than I,) simply by switching these people who
have already expressed a desire to live independently into homecare
services, the state would save $516,528,168.00 per year, every year. Im
sure we can all think of better things to do with our state tax dollars than
imprisoning disabled people who commit no crime in places they do not want
to be.
One can also say that allowing disabled people to hire their own workers and
set their own care hours encourages community-based economics directly. I,
for example, employ between 5 and 7 people usually, and for three of them I
am their only source of income. If I went away to an institution, what
exactly are these three people supposed to do?
One usually also doesnt think of homecare as promoting our seventh key
value of feminism and gender equity, but one look at the statistics clearly
illustrates this point. Most of the unpaid caregivers in our society are
women: Mothers, daughters and wives who must forego participating in
activities they would enjoy and earning in some cases a living because they
must take care of a disabled person. Often they are quite happy to do this,
and I dont mean to minimize their contribution, but wouldnt it be nice if
they had the option for both themselves and the disabled person to hire
extra help as needed?
Respect for diversity is a major goal of the Green-Rainbow Party, and we
have struggled with it. You cannot hope to respect every body without
allowing every body to have what they need to function. News flash: not
every person who wants to participate in broader society can get dressed or
go to the bathroom by themselves. This doesnt mean they shouldnt
participate.
The most important key value supported by the CCA is future focus and
sustainability. We cannot afford to force people into nursing homes who
dont wish and dont need to be there at a great expense to ourselves and
our state. Massachusetts is always complaining about its lack of financial
resources, which we have seen illustrated in reduction in food stamp
programs and housing subsidies as well as increased class sizes in schools,
and on and on. I think it would be more future-focused to allocate the 516
million dollars that would be saved through the CCA to funding these
programs rather than using it to keep disabled people in places that they
dont wish to remain. How much longer can we afford to engage in this
foolishness?
The current status of the CCA is that it has been referred to the Energy and
Commerce Committee of both the House and the Senate. Currently only one of
our Congressional Delegation, Senator Edward Kennedy, has signed on to
co-sponsor. The other eleven members, all of whom are Democrats, are
noticeably absent from the co-sponsor list. I think that we, as the
Green-Rainbow Party, ought to have some fun with this comparison. If we
decide to endorse the CCA, we have a tool to display to disabled citizens in
Massachusetts (who are practically programmed to vote Democratic) who is
really on their side.
Whether or not this convention endorses the CCA, which I hope it does, I
encourage each of you to bother those eleven absent delegates, who represent
you regardless of your Party affiliation to support the Community Choice Act
(Senate bill 799 and House bill 1621).
Example letter to Senator Kerry and the rest of the Congressional Delegation
Dear Senator Kerry and Representatives Olver, Neal, McGovern, Frank, Meehan,
Tierney, Markey, Capuano, Lynch and Delahunt,
I am one of your constituents and I write to ask you to support the
Community Choice Act, Senate bill 799 and House bill 1621. I was really
dismayed to discover that the only member of the Massachusetts Congressional
Delegation to support this bill, which would enable 8,200 disabled
Massachusetts citizens to rejoin their communities rather than living in
institutions, is Senator Kennedy.
I was further alarmed to discover that Massachusetts spends 60.6% of state
funded long-term care funding on institutions rather than encouraging people
to receive services at home. Studies have shown that people with
disabilities function better in a familiar setting. Additionally,
Massachusetts would save approximately $516 million dollars each year if
they redirected funds to homecare in order to serve the 8,200 people who
have expressed desire to return to their communities, according to the
Department of Medicare and Medicaid Services.
As Massachusetts is direly in debt due to the actions of the Romney/Healy
administration, we can scarcely afford to waste $516 million dollars every
year to keep citizens in institutions in which they do not wish to remain.
The Community Choice Act would eliminate this waste.
Thank you for your consideration. Please review this matter and contact
[insert your name and phone numbers and addresses here].
Sincerely,
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